how a deaf fluteplayer gets to hear again

Innocent Bystander · Post by **Innocent Bystander** » Tue Mar 25, 2008 1:18 pm

Alan wrote:
*hugs*

Don't YOU start!

Best of Luck, Berti!

mutepointe · Post by **mutepointe** » Tue Mar 25, 2008 8:12 pm

Wishing you the best Berti. I had been meaning to track this thread down myself but couldn't put two and two together to come up with a good key word.

anniemcu · Post by **anniemcu** » Tue Mar 25, 2008 8:32 pm

((((Berti)))))

I'll be holding you in my heart and prayers.

cowtime · Post by **cowtime** » Tue Mar 25, 2008 8:40 pm

My thoughts and prayers are with you. Hang in there.

swizzlestick · Post by **swizzlestick** » Tue Mar 25, 2008 11:07 pm

Berti, please hang in there. You have shown so much courage and spirit that I know you can overcome this. Focus on the fact that you already know it can work and the doctors just need to get you back on track.

Please do let us know how it goes.

Cork · Post by **Cork** » Tue Mar 25, 2008 11:33 pm

Berti,

Although this thread is now more than half a year old, I found it only today.

While reading through the thread, moreover, I enjoyed learning of your experiences, but this latest turn of fate is not good.

I am glad that you have shared your feelings, however, and I wish you well.

Please, keep in touch.

jw wren · Post by **jw wren** » Wed Mar 26, 2008 2:51 am

These cochlear implants were invented here in Oz and there's still a lot of work being done on them.

If all else fails you may wish to contact the Bionic Ear Institute:

http://www.bionicear.org/people/shepherr/

You never know, they may be able to help???

Berti66 · Post by **Berti66** » Wed Mar 26, 2008 9:37 am

I got home. Don't ask me how.
Saw the ear doc: did not even want to read the log that I had taken along which had all the details described. He looked in my ear and a ct scan is being requested but has a weeks long waiting list.
He told me the implant had likely moved which is why the swelling is there.
I felt not taken seriously.

Second, social worker.........could do nothing for me. I just sat there crying and was told they don't have enough people and not enough time, till over their ears in work etc etc which is THEIR problem but I am the victim of that.............and who knows how long its going to take and meanwhile my nerves are wearing very thin.
NO support from her.

Audiologist, only walked in, dumped the replacement processor and walked out, she had NO TIME , despite of the promise of having an appointment with her.

I don't know what to do now. If they are not in a hurry at all to help me while it is clear there is something wrong, I am on my own.
It feels like I can forget everything now..........they don't seem to care about the fact how I am feelig right now and just sent me home.
It feels like a completely wasted day...........and I know I don't even have the right to switch hospitals .......otherwise I would just do that.

I have no words for what I feel and what goes through my mind.
It's scary.

Berti

fyffer · Post by **fyffer** » Wed Mar 26, 2008 10:04 am

I hope you can take some comfort in the knowledge that we are all thinking of you during these difficult times. Not to sound too cliche, but this too will pass.

mutepointe · Post by **mutepointe** » Wed Mar 26, 2008 6:09 pm

Dear Berti:

As a social worker, I wish you would have received better from that social worker. It's isn't your fault they're short staffed. In those many occasions when I can't solve someone's problems, I at least try to give folks some tools, information, or direction for them to begin to work on solving their problems themselves.

I don't know how things are where you live, but everyone has a supervisor and there is usually a process for a person to file a complaint or resolve a problem to receive satisfactory service.

anniemcu · Post by **anniemcu** » Wed Mar 26, 2008 10:58 pm

Berti, hang in there... I know how depressing this set-back is, but it is not necessarily a permanent thing... It is bad that the powers that be are too busy to actually do their jobs, but that doesn't mean it won't happen... take some deep breaths and know that we are all pulling for you. As someone else said above, "This, too, shall pass."

I'm crossing fingers, thinking pointed thoughts to those who need to pay better attention and aiming strength, patience, courage and luck your way. Keep letting us know what's going on. We're here for you!

((((Berti))))

annie

Berti66 · Post by **Berti66** » Wed Mar 26, 2008 11:55 pm

hi all

*THANKS* this helps a bit.
But I have more arrows on my bow........I have meanwhile thought out what I am going to do and drew the conclusion that I am SO fed up with that hospital.

I am going to contact an organization which works with people with hearing problems and which also has social workers.
Yesterday an (also implant wearing) friend told me that someone had managed through them to be sent to another hospital and is doing much better now.
That same friend will also talk to her own social worker next wednesday to see what's possible as she is shocked about what is happening.
Besides that, I do know an audiologist who works not too far away who is head of the department of an audiology centre and who might be able to help but that is a last resort.

It is clear there is something wrong in my head and I do hope that it won't get any worse meanwhile. Will try to put down things on paper which have happened since november to have a story ready.

Doesn't mean I don't feel very very very tired of all the fighting. Trying to hang in here and do my daily jobs and stuff.
Sheesh sometimes I really think "what have I done to deserve this" although I KNOW it is NOT ME....

Send bottles of wine along please for medical purposes only

Berti

claudine · Post by **claudine** » Thu Mar 27, 2008 3:17 am

come on Berti, be strong and get through this difficult period. Don't give up hope.

Innocent Bystander · Post by **Innocent Bystander** » Thu Mar 27, 2008 6:19 am

Keep the faith, Berti! I'll drink to your health tonight.

ElPollo · Post by **ElPollo** » Thu Mar 27, 2008 8:42 am

Innocent Bystander wrote:Keep the faith, Berti! I'll drink to your health tonight.

I'll drink to that. Cheers.